This policy describes the practices of Johnson County-Clin Trials’ practices regarding personally identifiable information and data (“Personal Data”). This policy applies to our website, email communications, and social media accounts (“Platforms”). When you use the Platforms, you agree to the terms in this policy.


Our websites and platforms (excluding outbound links) are controlled by us. All content, images, and materials belong to us unless specifically indicated otherwise and are protected under copyright law.

We understand that various laws and regulations around the world govern data protection, and protecting your privacy is as important to us as it is to you. This policy will outline how we collect, use, share, and protect information.

Collection and Use


Website Visitors

If you are a Visitor to our website only, and not a registered Participant for our studies, then this section is relevant for you.

In general, you may visit this website without identifying yourself or revealing any personal information.

As you browse our website, the site collects the IP address of your computer and clickstream data (information that site users generate as they move from page to page and click on items) and this data is aggregated with usage data from all site visitors.

Some portions of this website may require you to give us personally-identifiable information such as your name, e-mail address, telephone number, etc. (Personal Information). If you communicate with us by e-mail or social media, complete online forms or surveys, or otherwise willingly communicate your information in any way to us (digitally or otherwise) any information provided in such communications may be collected as Personal Information.

We collate data about visits to our websites, including numbers of visitors and visits, geo-location data, length of time spent on the site, pages clicked on or where visitors have come.

Purpose of collecting and processing personal data

Johnson County Clin-Trials uses the collected data to improve this website and related platforms to provide a great experience for visitors and participants. This can include communication, content, navigation, etc. Personal Data is only collected for a purpose that you approve.

Sharing personal data

If you provide us with a review or comment (on the website, social platforms, email, or surveys via Survey Monkey), you authorize us to publish it on all of our platforms. You also authorize us to aggregate it with other reviews.

We may disclose personal information if required by law, for example to law enforcement or other authorities. This includes court orders, subpoenas and orders arising from legal processes, and administrative or criminal investigations. We may also disclose your personal information if the disclosure is necessary for the prevention, detection or prosecution of criminal acts or to prevent other damage, or in response to a legal action or to enforce our rights and claims.

We may also share anonymous aggregated usage information with others.


A “cookie” is a string of data sent by a website to a user that is inserted in a file of the web browser of the user visiting the site. Cookies cannot be used to run programs or deliver viruses to your computer. By continuing to visit the website, you agree to the placement of cookies on your device. You can opt-out of using cookies, however, we cannot guarantee that your experience will be as fulfilling as it would otherwise be. We may also place cookies from third parties for functional and marketing purposes. The use of cookies is widespread and benefits the surfer.

Links to other sites

Please be aware that while visiting our site, Visitors can follow links to other sites that are beyond our control. Johnson County Clin-Trials is not responsible for the content or privacy policy of these other sites.


Participants, those participating or having a wish to participate in our studies, should be aware that in registering with us and as part of that registration process, certain Personal Data is collected, including some Sensitive Personal Data. This data is collected entirely with your consent through your providing this data directly.

Purpose of collecting and processing personal data

Johnson County Clin-Trials uses data collected purely for determining eligibility for studies the Participant may wish to participate in and for customizing the display of studies for the participant. The Personal Data of our participants becomes part of the record of the study even if the participant does not pass the screening process or otherwise drops out of the study.

Sharing personal data

We do not share your Personal Data except with business affiliates participating in the running of the study, or as pseudonymized data as part of the study record and as required by regulations.


Johnson County Clin-Trials does not knowingly collect personal information from minors on our digital platforms. If we become aware that a minor is attempting to submit personal information on our digital platforms, we will remove this information from our records. We will only collect information from minors who are participants of our studies with a parent/legal guardian present for the collection of the data during the signing of the IFC. If you feel that your child’s data has been collected by us without your consent, please contact us immediately so we can remove it for our records.

Retaining and Deleting Information

Johnson County Clin-Trials will not retain data longer than is necessary to fulfill the purposes for which it was collected or as required by applicable laws or regulations. In accordance with regulations, if you have been screened for, or participated in, a study then your data may not be deleted and must be kept on file. If you have applied to participate in a study and then requested that your data be deleted, even if you have not participated nor been screened for a study as noted above, we will delete your information from our records immediately. Website data and collected information, if not currently being used for legitimate business purposes as described and explained in this document, will be deleted as well.

Changes to the Policy

We may modify this Privacy Policy at any time and without prior notice. By using our services and Platforms after we post these changes, you are indicating that you accept them.

Contact Us:

If you have any questions regarding the privacy policy, please contact us at 913-825-4400 or